tag:blogger.com,1999:blog-1863629804514411236.post3015773921685782306..comments2023-10-09T09:37:42.523-04:00Comments on Naturally Sweet Sisters: Me, Myself and I - A Week Without Kids and GlutenNaturally Sweet Sistershttp://www.blogger.com/profile/16430311447273580229noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1863629804514411236.post-17614020336518869272013-07-01T16:30:01.243-04:002013-07-01T16:30:01.243-04:00Thank you Kelly and Karen! Very true and respecta...Thank you Kelly and Karen! Very true and respectable advice. The girls are staying on Gluten until we can get another look at blood tests. Scheduling an appointment for myself as well. Anecdotal evidence is exactly what is getting me concerned enough to do this!!!! Naturally Sweet Sistershttps://www.blogger.com/profile/16430311447273580229noreply@blogger.comtag:blogger.com,1999:blog-1863629804514411236.post-80654536419708843702013-06-28T16:22:04.291-04:002013-06-28T16:22:04.291-04:00I completely agree with Kelly S and was going to p...I completely agree with Kelly S and was going to post something very similar. As the daughter and sister of a celiac, I have been around it for over 10 years. The problem with going gluten free is that you will skew your test results to not be correct as you have eliminated what you are testing for (make sense). Also the blood test is a good starting point but the biopsy is still considered the gold standard. Also, you have to remember that, should you have CD, if you go gluten free without knowing whether that is really the issue and then add gluten back in (either intentionally or unintentionally) at a later time you will react 10 times worse than if you had never eliminated it in the first place. Just ask my Mom who lost 2 days of a vacation to be unintentionally "glutened". Your best bet is to keep things status quo then work with your Dr. to determine the exact cause of your issues and get the exact data rather than just anecdotal evidence.Karen Whttps://www.blogger.com/profile/01439138239215732948noreply@blogger.comtag:blogger.com,1999:blog-1863629804514411236.post-79407187824045653692013-06-28T13:14:05.372-04:002013-06-28T13:14:05.372-04:00I have Celiac, and have been gluten free for about...I have Celiac, and have been gluten free for about 2.5 years. My best advice to you and the girls is to keep eating gluten and make a beeline for the doctors office. Even being off gluten for a week can reverse a lot of the damage that docs look for when trying to make a diagnosis. Also, probably more for the girls since they already have T1D (making them more prone to Celiac) if the blood test comes back negative but you feel confident gluten may be a problem, do a biopsy anyways. The blood test has been notoriously faulted over the years, with many people given both false negatives and positives that can only be truly confirmed/denied through a biopsy. Good luck to you all...it's a tough road, but worth it in the end when you feel better! Kelly S.noreply@blogger.com