Thursday, October 9, 2014

Low to High to Low

The weather shifted last week.  From mid-80s to low 40s.

Not only did the thermometer and the weather man let us know, so did T1d.

I think that may be one of the crappy highlights of having T1d.  

When the weather changes, so do insulin needs.

And while I know this (and so do the Naturally Sweet Sisters), we all tend to forget about it until we are in the second next crappy highlight of having T1d; lows to highs to lows again.

It is a vicious weather cycle.

Do you see this or is this a weird thing at our house only?  Share your thoughts if you get a chance.

Monday, October 6, 2014

Diabetes at Middle School - A View From The Cool




My youngest daughter is having a great sixth grade year.  The kind of year that brings about a lot of chatter while constantly exuding happiness and excitement.  Suddenly, everything she thinks about is shouted at me in various forms of  'Mom, YOU HAVE GOT TO HEAR THIS... ' or 'Did I tell you ABOUT HOW I DID THIS'.... 'MOM, LOOK AT THIS!'

My personal favorite is 'OMG Mom!  Today at school, there was this kid and guess what he did?  He ........ '.

You can fill in the blank with whatever you think the kid did because I am pretty sure that the kid did indeed do it.  (Let's have a moment of silence for those teachers in thanks for all that they do!).

I cherish these moments and I am so happy that she is choosing to let me into her world.  I want to hold that close and enjoy it while it lasts.

Especially when she shares with me the very best of all her stories.

In her sixth grade homeroom, her teacher, Ms. M, has been incorporating diabetes into the class service learning program.  For the past four years, Ms. M has done this voluntarily as she has a personal connection to T1d within her own family.

For a grade level that be full of students that simply want to blend in, having something (anything) can be a catalyst to feeling like you are not part of the group.

Even with the best preparedness, T1d has the potential to that giant red flag to feeling like you do not fit in.

But because of this teacher and her gentle way of incorporating life and T1d, this is not the case.

As of last night, youngest daughter came home once again with an excited look on her face and said, 'MOM!  YOU HAVE GOT TO HEAR THIS!  I AM A CELEBRITY WITH MY INSULIN PUMP.  KIDS LOVE THIS INSULIN PUMP.  THEY THINK IT IS SOOOOO COOL THAT I GET TO CARRY THIS AROUND! OMG!  MOM!  DID YOU HEAR THAT?  IT IS SOOOOOOO COOL!'

She pauses and smiles.

'Which means, Mom.... I AM SO COOL!'




Tuesday, September 30, 2014

2015 JDRF and Children's Congress - Apply NOW



One day in 1999, long before our youngest was diagnosed, a little 9-year old boy named Tommy and several JDRF families gathered together to discuss the need to get the faces of T1d in front of research funding decision-makers.  Those sweet faces included not only Tommy but 150 kids ages 4 to 17 and those research funding decision-makers included each state elected official in Congress.  The impact was enormous as it was hard to deny the need for a cure after hearing each child's story.

Since that first meeting on Capital Hill, JDRF has been sending a fresh group of 150 children each and every single year as representatives living with type 1 diabetes from each of the 50 states, including the District of Columbia.


My youngest applicant hopeful for Michigan JDRF Children's Congress


Those children meet to share their personal diagnosis story, interact with lawmakers and commit to continuing on with advocacy efforts after the JDRF Children's Congress is over.  The impact is long-last not only for the child living with type 1 diabetes, but for everyone who hears their story.


My oldest applicant hopeful for Michigan JDRF Children's Congress


Personally, after my own two children applied, I found hearing their words on the application essay to be so powerful that I was moved to tears and had to leave the room.  And this is ME, the mom who has been with them from day one and feels slightly numb to most re-telling of the stories.  It's THAT powerful when it comes from the voice of a child.


jdrf-cc-header-delegates-obama
Past JDRF Children's Congress Delegates from around the United States
July 13- 15, 2015 marks the next JDRF Children's Congress and applications have already started filing in from hopeful children and families that would love to attend.  What is important about taking the time to complete an application is that even if a child and family is not chosen, then the information within the application, including pictures and heart-felt letters, can still be shown to lawmakers to emphasize the need for a cure.

To complete an application for JDRF Children's Congress, please click this link.

This type of grassroots advocacy is important as much of the necessary funding to keep projects moving forward (artificial pancreas, smart insulin, encapsulation) is happening due to demonstrating the need.

To sign up to become an Advocate for JDRF, please click this link and follow the instructions on the home-page.

Even if you do not want to complete the JDRF Children's Congress application or sign up for JDRF Advocacy, you can still make a difference.  Send your local JDRF chapter a quick email that says 'thank-you' for all of the hard work that they are doing.  I did that today and made sure to say tell them how much I appreciate their efforts.  It has been eight years in this journey and our healing threads are interwoven with every person that we have met with a T1D connection - the greatest being our friends at JDRF SE Michigan, West Michigan Chapters and Midwest Region, and our Mott Children's Hospital.  Their kindness has shaped my children's belief system and we have undying HOPE for a cure.

Like Nick Jonas sang at JDRF Children's Congress one year.... a little bit longer and I'll be fine.

On behalf of all of the children, teens and adults living with type 1 diabetes, you CAN make a difference just by sharing your story.

Individually, we are small, but together we are millions of people feeling the effects of living with type 1 diabetes.  It is time to get that CURE!!!




#curet1d #jdrfchildrenscongress #michigancongress #jdrfadvocacy #naturallysweetsisters