Friday, September 26, 2014

T1D Perks

Thank you to Mott's Childrens Hospital and Dreams and Wings!
In living with type 1 diabetes for such a long time, the girls have discovered that sometimes, there are certain fun things that come along with having an autoimmune disease.

We call those fun moments 'T1d perks'.

That ability to understand that having T1d perks is also a wonderful coping mechanism helps to stop the burn-out from answering those 800 daily questions that living in the T1d world demands.  

A couple of weeks ago, we visited our local airport, courtesy of Dreams and Wings through U of M Mott's Childrens Hospital to tour their helicopters and take a flight over the town in a little four-seater airplane.  Since the event was through the hospital, children from all over attended.  Some were diagnosed with T1d and some were diagnosed with other ailments.  All were excited to be there.

That T1d perk not only brought smiles to everyone that attended, but also lifted up my girls and gave them another view of how many different diseases and struggles that many children (and adults) face.  
This is not to say that it diminshes what they go through while living with T1d, but it reinforces empathy and compassion for others.  Everyone has something....

By the days end, both of my girls left convinced that they are sure of their future calling and surprisingly with as much fun as they had, it wasn't becoming a pilot. 

Both daughters explained that they decided to pursue a position within the medical field.  My oldest daughter spoke quietly about becoming a doctor and the youngest said that she wanted to "Do something with research.  There has to be an answer to 'why', mama."

It's too early to tell for sure, but my hope is that they do continue to follow the road that leads to happiness.  That would be the best T1d perk!

Tuesday, September 23, 2014

Taking MySentry For A Test Drive

I am surely behind on discussing this.  Like all of the cool kids, most of you have already used or at the least heard about Medtronic's MySentry.

We are borrowing one for a short time to see how it works for our family, most especially, our teenager that loves to stay up and sleep in until noon on the weekends.

Not having used it for very long, I am not overly qualified to give raw data regarding accuracy or technicalities.  I can only speak about lifestyle and really, just our lifestyle of living with two girls that also live with t1d.  

First thing we noticed is that this baby is easy!  The set-up? Open box, plug, sync and play.  

Literally, two minutes after walking into our front door, oldest daughter spied the box and immediately had it up and running.  I know she is technology maven, but it was so simple, I am certain anyone could do this.  Any by anyone, I mean me.

After marveling at her bg number - because this was a real school day number - totally amazing!, we found ourselves noticing some of the other cool features.  The length of time on her Enlite sensor, the amount of insulin in her pump and the life of her battery.  Super fun to see.

As a parent, it was also great to once again watch the blood sugar without pestering my oldest daughter.  Her younger sister is wearing the Dexcom and I often hold the receiver while she plays.  With the Medtronic 530g, much of the daily data is in my oldest daughter's hands and I am unable to see what is happening unless I sneak a peek.  This solves that issue.  In fact, we set the My Sentry next to the t.v. and had fun viewing her trends as we watched a movie.  The little sister Dexcom was placed alongside, so 'Dexie' didn't feel left out.  Yes, we are weird family.

The alarm is also loud.  Like L-O-U-D!  When signal was lost, the MySentry let us know immediately.  Even our cat stopped and took notice.  Having that feature in the middle of the night would be comforting.  As this is about the size of an iPad, taking it along to a sleepover would be no big deal.  

Would I purchase one? It is so early in our learning, that I honestly could not say.  Insurance coverage has been approved in some cases.  That would be a factor in our decision, especially with two children that require twice the amount of medical supplies.  

My advice is to give it a try and see if it works for your lifestyle.  If you do or have tried My Sentry already, drop a comment and let me know your thoughts.  I would love to hear your feedback.

Wednesday, September 17, 2014

A T1D Mom's Miscommunication

With school back in session for around three weeks, teachers are busy with assessing placement.

My own two have been taking tests to see where they rank and also, to provide a guide to their future years' learning.

Mostly, I sit back and wait to see what happens.  Certain tests are more important than others, but at the end of the day, it is always about 'doing your best'.  That's all anyone can ask for.

Today, as I was wrapping up part of my at-home desk work, my personal cell phone beeped with a text update.  Glancing at the clock and realizing it was not an expected lunch time, I was instantly on high alert for whatever it was about to tell me.

Youngest Daughter:  Mom, I have to tell you that I did really well on my SRI (standardized reading assessment) and I am 238.

Insert a panicked look on my face.  A 238 SRI score isn't even near a 6th grade reading level.  She had to be having a HIGH blood sugar.  Or worse.  Or did she just blow it off?  How on earth do I respond to her text?


More silence.


Me:  Okay.  Well you did your best and I am always proud of you.

Youngest Daughter:  Thank you!  I am proud too.

Huh?  Her comment makes no sense to me but I figure that a text while she is at school is not the time to deal with it.

Later that day........

Not too much longer and I am anxiously awaiting her arrival.  After the bus drops her off, I casually broach the subject.

Me:  Soooo.  You sent me your SRI score today.

Youngest daughter:  Yes, wasn't it great?

Me:  A 238?

Youngest daughter:  What?

Me:  Did you get a 238?

Youngest daughter:  What in the world?  No, I got a 1028.  Where did you get a 238?

Me:  From your text message.  Wait, you got a 1028?  That's awesome!

Youngest daughter:  Oh geez mom.  That was a 238 mg/dl!  Seriously?  You seriously thought that I scored a 238??

Yes, this is a very true story.