Tuesday, August 12, 2014

Calling All The Endos, Calling All The Endos...





On Friday, I placed a call to our CDE and asked for help regarding set-up.  After our initial experience with failing 2:00 a.m. sensor insertion, and then our follow-up with the sweet Medtronic reps, I felt it best to make sure our endo team had a good look at how I had set up our insulin pump.  

Not to mention that I felt pretty defeated by the entire new pump experience and wanted at least one pat on the back.    

Unfortunately, the call back did not happen.  Not on Friday.  Or Monday.  Or even today, Tuesday.  

As the week ticked on, so did our supply box of infusion sets.  While a box of ten infusion sets would normally be enough to last a month, our teen aged daughter also had an active week which included multiple sleepovers and tons of swimming pool time.  Her normally sticky sites proved not to be so sticky and before we both realized, our stock had dwindled down.  Suddenly, we were staring at the last infusion site in the box.  

I wanted to cry.  Feeling my stress, oldest daughter DID cry.  And for a second time in a row, I wanted to question my sanity as to why I thought switching insulin pump brands was a good idea.

With kindness from our t1d friends, a few offered us help with supplies to get by until our next shipment.  Thank goodness for the DOC because without them, we would surely flounder.  

However this isn't the way that I feel most comfortable.  I am the girl that loves nothing more than a plan and a routine.  The last few weeks have been more than rough on my needs.  Nothing like flying by the seat of your supply pants.

I even attempted an online order for a cartridge product that allows infusion sites from Animas to work with Medtronic in an effort to use what we already have.  My thought was that if our endo group was going to wait, maybe I could take care of the supply problem myself.  

Efforts were thwarted with that idea because on Monday, I received a call telling me that the online company needed a script in order to send them.  Sigh.  Nothing I could do on my own.

So, I reached out a second time on Tuesday and called our endo team back.  

As it turned out, our regular CDE happened to reside in a pocket of town that received a freak heavy rain storm, causing major housing flooding, making it difficult to leave or get to work.  After explaining this, our endo receptionist staff forwarded my request to another CDE and marked my call as 'priority' for a callback.

And this is the magical part of the story where sometimes fate intervenes in a big, positive way.  The CDE that returned my call was AMAZING!  She reached right through the phone to give me a big giant hug with her kindness and understanding.  She also offered both solid advice and more encouragement.  She happily took my new CareLink information and promised to review everything and call us back.  Then she straightened out the supply order, noticing that we should have received 15 infusion sites for the month and promising a quick delivery of five more.  

Not even ten minutes later, I received a second call back to let me know that she wanted to make sure she had the correct color of Mio's because "Kid's color choices are important".  

Amazing stuff.  

And maybe that is another reminder of why it is so important to have such a great team around us at all times.  




Thursday, August 7, 2014

Walking For A Cure



We recently completed our annual JDRF Walk To Cure Diabetes.

As is in most towns, our walk is being realigned with the JDRF vision of  'One Walk', which helps to explain the community involvement of not only persons living with type 1, but all of the family and friends that come out to support the vision of making type 1 into type none.



From the JDRF website:  Each year, JDRF One Walk™ (formerly JDRF Walk to Cure Diabetes) brings together more than 900,000 people to change the future of type 1 diabetes (T1D). Many of these people have T1D themselves, and many more are friends, family, or coworkers of someone challenged by this disease. But no matter what their connection is, they walk because they believe in a world where T1D no longer exists — a world where Type One has become Type None.

This year, instead of walking at regular location, we chose to head back to our beloved Alma Mater at Michigan State University.



You know that feeling you get when you go home?  Well, that was the feeling that we had upon arriving on campus.  My husband and I met, fell in love, graduated and even got married a year later at the campus chapel.



The girls have been to more MSU events than I can count as we have been sending them subliminal messages about the importance of choosing MSU for their own college education.  I kid, of course.

Well, sort of.  It would be super cool to relive our glory days.  I kid again.  Sort of.  ;)



No matter, by all regards, the walk did feel like homecoming, but even better, as we were surrounded by our t1d pals.



Which is important to remember.  We walk to support JDRF and ultimately, a cure for type 1 diabetes.  We also walk to show support for our daughters and for all of the friends that we have met along this journey.

Yes, I want a cure for my two, but I also really want a cure for our friends and most especially, the future generations that are yet to come.

It's time.

Let's turn type 1 into type none.




If you would like to join in a walk near your location, click HERE and simply scroll to the bottom of the page to enter your zip code to find a walk event close to your 'home'.  And as always, thank you for supporting a cure!




Wednesday, August 6, 2014

You've Come A Long Way Baby!

Change is good.

Photo



On the left, the one of the earliest Medtronic Insulin pumps, the Minimed 506.  On the right, the latest Medtronic Insulin pump, the 530g. 

Yes, change is good.

And now I can finally see that beeper resemblance circa 1992.