Monday, July 21, 2014

The Waiting Game




June 27th:  My daughter's last endo appointment.






July 21st:   Insulin pump script sent to order fulfillment to begin processing.


See that white space in between the two dates?  That's me calling and checking on the process to see what is holding it up.

And now, I wait some more for the order to submit, insurance to approve and for the pump to be delivered.

Tell me: does this make you feel slightly crazy too?
And how do you make this process better?
I would love to hear your thoughts.


Saturday, July 19, 2014

Kids Choice: Annoying T1D Questions and Their Standard Answers

In discussing this in a recent conversation with my daughters, I decided to write down their 'standard answers' of questions that people ask regarding life with type 1 diabetes.

Remember, this is almost 8 years in as our diaversary will be in December of this year.  I don't know if we would have known to say any of this in the first few years.  For a lot of questions, we have two answers that we frequently interchange.  It all depends on if we are talking to a crazy grocery store cashier or a kindly little old lady.  And if you are reading this, we know you understand it.  BIG difference.  BIG!



Kids Pick The Frequently Asked Questions and Their Favorite Standard Answers:

Q1.)  Can you eat that?
A1.)   Is it poison?  Because I can eat anything that isn't poison.

-or-

Q1.)  Can you eat that?
A1.1)  I match insulin to carbs.  Carbs are in everything from carrots to cookies.  As long as I count the carbs and gives myself the insulin, I am free to eat anything I want.





Q2.)  What's that? (pointing at an insulin pump or a cgm or a blood sugar meter).
A2.)  What?  OMG!  When did that get there????

-or-

Q2.)  What's that?  (pointing at an insulin pump or a cgm or a blood sugar meter).
A2.2)  I have type 1 diabetes, an autoimmune disease, that requires insulin for life.  The way that I get insulin, watch blood sugar, or check blood sugar is by using that gadget.  It's pretty great but it's not a cure.





Q3.)  So that pump, it does it all right?
A3.)  The pump is great but it doesn't have a brain.  I still have to program it.  Kind of like that old VCR that my mom told me you used to use.


-or-


(And for this one - we don't have a gentler version.  Pumps are brainless.  Period.)





Q4.)  Does it hurt?
A4.)  Yes, of course.  It's a big needle.  Want to try it?

-or-

Q4.)  Does it hurt?
A4.4) Yes, of course.  I don't think about it because I have no other choice.  You would do the same.





Q5.)  Will you outgrow it?
A5.)  No.  We need a cure.  And since you asked, if you want to help us get there faster, feel free to donate to our JDRF walk team under Naturally Sweet Sisters HERE.





Ok, so I added the last one... but if you do want to help, please feel free to click on our walk team to make a safe, secure, tax-deductible donation to JDRF.  A cure is closer than ever!






Friday, July 18, 2014

July 24 #JDRF1DAY


@natsweetsisters #jdrf1day

In a neat and surprising way, JDRF approached me and asked if I would be willing to use Twitter to share an inside look at one day in the life of our daughters while they live with t1d.  

Did you catch my interesting choice of words?  "While they live with t1d."

I write it like that because my hope is that through being completely transparent in our life and showing the world our highs and the lows of t1d, we can help further advocate for the need to help JDRF gain support for research that ultimately results in a cure for t1d.  

It would be absolutely wonderful to be able to look back at a world with t1d - because now it simply does not exist.  

That's called HOPE.  

You can't see it but it exists and it is powerful, my friends.  Eight years of HOPE and we are getting closer every day to finding that elusive cure for t1d.

Come join us, share with your friends and family and watch as the HOPE comes alive.  

@Natsweetsisters  #jdrf1day